There Should be an Altruistic Intersection of Innovative Technology and Healthcare

Note: This is a semi-rant on the current state of healthcare and innovative technology and why we all should be motivated to do something more about it. The opinions expressed here are mine and mine alone (Chimezie Ogbuji).

We recently wrote-up a case study for the W3C Semantic Web Education and Outreach Interest Group:

"A Semantic Web Content Repository for Clinical Research"

A major difference between the user experience with SemanticDB and the previous interface to the relational technology-based Cardiovascular Information Registry (CVIR) that has accelerated adoption of Semantic Web technologies is the use of local terminology familiar within the domain rather than terms that are a consequence of the physical organization of the data. In addition, the model of the domain (expressed in OWL) is more amenable to extensions typically associated with targeted studies that introduce additional variables.

It is an overview of the work we have been doing on clinical research driven by the value of having well-curated population-level patient data. It is a very appropriate use case for the semantic web in two respects: the problems addressed by the specific technologies used are directly relevant for clinical research, and certain sociological aspects of the semantic web (altruism through innovative technology, open communities / standards / software, etc.). This later point isn't emphasized often enough, though I've been thinking quite a bit about it lately as I've been developing a compact ontology for medical records. This started as a side project associated with the activities in the W3C Semantic Web Healthcare and Life Sciences Interest Group that I am involved in but has since become a personal project to investigate a personal philosophy that has recently come in contact with the nature of my current work through a tragedy in my family.

One of the things, I would like to do is learn a bit about the ailments in my family through active engagement of the science behind these ailments. I'm a software hobbyist with aspirations for contributing to pragmatic application of knowledge representation to common human problems. I have access to all the technologies and tools that can make a personal medical record repository a reality for me. I have access to a massive, freely available, well organized ontology of clinical phenomenon (GALEN). Common sense suggests that there is no one more motivated to learn if such an excercise is fruitful than myself. I could sit around, waiting for modern medicine to catch up with the reality of the innovative technologies of today, but why should I wait? Why should we wait is the question I really want to ask, but at the very least I can do something about my immediate situation (we have royalty-free standards, open source software, and open communities to thank for that).

If I have tools which can draw sound conclusions from well-currated information about all my medical history (and the medical history of my loved ones), document the complete set of justifications to these conslusions, reduce forms-based management of this information to a trivial task, and can be stored in a content repository, is it not in my interest to take advantage of these tools to the benefit of my health and the health of my loved ones?

To a certain extent, applying innovative technology at the point of care or for research purposes is a win-win. No brainer, really. At least it shouldn't be. It is in the best interest of both healthcare providers and recipients of healthcare services to leverage innovative technologies.

I work for a non-for-profit organization with a mission statement to the people of Cleveland. I'm one of those types who take such thing serously (oaths, mission statements, etc.). I was born (and essentially raised) in the greater Cleveland area. I have (young) children and family here. In addition, there is a strong history of hypertension and diabetes in my genetic lineage. I've lost loved ones at the point of care. The combination of these things makes the work I do much more relevant for me and as such I take it very seriously.

The ridiculous cost of healthcare, its effectiveness, and curation of expressive, patient data for the benefit of scientific reserach should be thought of first as a problem that modern science has a duty to solve rather than simply a business oppurtunity. A certain minimal amount of altruism is required. Anything less would be a diservice to the silent oaths that nurses take when they dedicate their professional lives to the healthcare of the populace with a vigor that only few can demonstrate. My mom was (and is) an incredible nurse, so I should know a little something about this.

At any rate, I think collectively we sit at a point of transition and reformation in the way healthcare information is housed, managed, and leveraged. I believe the shape of things to come will depend largely on how well we understand that altruism deserves a very prominent seat in all this. Everyone is effected by unecessarily expensive healthcare costs, even the providers themselves.

Chimezie Ogbuji

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The Buzzword Firing Squad

If buzzword proliferation was a punishable crime, the penitentiaries would be full of software developers and blog authors.

Below is my list of buzzwords, catch-phrases, and technologies that need to be summarily executed without a lengthy trial:

  • Web 2.0 (do I even need a reason?)
  • AJAX (ahem.. The idea of asynchronous HTTP requests for XML content is core to XForms and better architected in that context)
  • SOA / Web Services (90% of the time people use this term they refer to SOAP-based remote procedure invokation specifically)
  • RDF/XML Syntax (This one has done more damage to RDF advocacy than any other)
  • Semantic (This term is so thoroughly abused that it would be par for the course to read of cron job referred to as a 'semantic' process.)
  • "Yes, that's very nice and all, but does it scale?" !*&%#@@$!!!
  • Ontology: I've found it easiest to think of an Ontology as a Taxonomy (or polyhierarchy) with a minimal number of logical constraints. Without logical constraints, there is nothing 'ontological' about a model that could easily be represented in an E-R diagram.

I'm certain this is only about 2% of the full list, I'll be sure to add to it as more come to mind.

[Uche Ogbuji]

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Principle vs. Ritual

The difference between principle and ritual is the reason or motivation for why you do things in the first place. Typically, ritualistic actions are done primarily out of fear of repercussion and judgement (by peers or supernatural entities) or just not knowing any other alternative. In contrast, actions based on principle are motivated by doing what is right (at the most basic, instinctive level).

[Uche Ogbuji]

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Rant: The Infiltration of Hallmark Days

Okay, with the hope of inspiring more content from moi, I'm starting a 'rant series.' My topic today is Hallmark Days (which is the term I choose to refer to holidays with little to no significance other than to generate revenue for gift vendors). I was chastised today for missing a recent holiday and it sent me into a fury which quickly rendered me unable to express why I felt it was a bit unfair.

Perhaps it's just me, but I feel that anniversaries and holidays are supposed to be days that truely stand out from the others. They usually indicate a day delegated to celebrate a particular virtue, theme, or value or they mark the anniversary of an event of importance. Wedding anniversaries, birthdays, anniversaries of historic importance, and religious holidays seem (for me) to fall into the catagory of days that have specific significance to the people who celebrate them.

However, at what point do we draw the line between days with obvious significance and days with a significance prescribed by people and entities with commercial interests in the buying and selling of gifts? Should such a line not be drawn for fear of seeming trite? I could name a few holidays that - in my opinion - only serve the purpose of feeding the spending machine that we have become (the color red comes to mind). However, I think the most constructive suggestion I could leave would be to consider the true importance of a holiday you wish to celebrate with loved ones. Ask yourself if it represents a value that deserves more than just a brief mention or if it only being remembered as a result of common ritual. In addition, ask yourself if you aren't better served in demonstrating your love for someone special in your life on a daily basis instead on just those marked on your calendar.

[Uche Ogbuji]

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